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Continue reading →: What makes high quality PPIE?Image: Microsoft library Now this is an interesting one. A few days ago I was in a workshop with colleagues from different organisations and we were discussing some collaborative research about PPIE that had been done and how that has informed the policy and guidance of this particular organisation. During…
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Continue reading →: What the letters in PPIE really mean (and why we don’t need the extra ‘P’)Image: https://www.hobbycraft.co.uk/wooden-letter-tiles-114-pieces/6219111000.html Some months ago I was in a meeting with some PPIE (patient and public involvement and engagement) colleagues from across the region and someone mentioned: “Oh it’s PPIEP now, at least that’s what I heard.” I asked what the extra ‘P’ was for and they replied ‘participation’. I…
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Continue reading →: The challenge of authenticityImage: https://deltahub.io/en-uk/blogs/news/cant-open-hand-all-the-way-find-out-what-could-be-wrong The name of this blog and the purpose of my research is to find an authentic way to carry out public involvement in research. It sounds like a lofty ideal – and it is, but none the less I have set my course to try and find the…
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Continue reading →: Sharing some INSPIRE-ation!Image: screenshot from a presentation given for the University of Portsmouth’s School of Dental and Healthcare Professions, 2025 A couple of months ago I was fortunate enough to be invited to share some of the findings and thoughts from the INSPIRE project, which was the research internship funded by ARC…
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Continue reading →: The Rowboat and the Jetty – a cautionary taleImage: source unknown Before I worked in the NHS and caught the research bug, I used to work as a freelancer in creative engagement. I was in this space for ten years and essentially I would think about what kind of conversation might be needed about a particular topic with…
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Continue reading →: Trauma-informed practice – further thoughts from someone with lived experienceimage: https://www.childsafeguardingconsultant.co.uk/trauma-informed-practice-in-education-and-healthcare/ Yesterday I posted about some thoughts I’d been having about trauma-informed practice and the unspoken social contract of seeking and (hopefully) receiving care. This post was inspired and informed by a conversation I’ve been having with one of my volunteers. I’m supporting them to have a conversation with…
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Continue reading →: The unspoken social contract – why public services need to be trauma informedImage: https://autistic.blog/2023/04/21/the-social-contract-2/ I’ve been supporting one of my volunteers recently and it’s sparked a whole host of thoughts this morning about trauma-informed practice and unspoken social contracts. This may not appear directly relevent to PPIE work, but as we explore this thread, hopefully you’ll see the links. The individual I’m…
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Continue reading →: Bricks and mortar – how emotions and lived experience hold research togetherimage: https://www.rubi.com/en/blog/how-to-build-a-brick-wall-step-by-step/ Back in March ARC South London put on a webinar about Emotions in PPI. I signed in to watch it at the time, but on that particular day I was being battered by perimenopausal fatigue and could barely function, so I sidled out again and vowed to watch…
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Continue reading →: Why PPIE needs DND – the importance of Session ZeroImage: https://www.reddit.com/r/DnD/comments/78i8k7/oc_hey_i_made_a_dnd_class_logo_wallpaper/ When I drive to work in the mornings I like to listen to a podcast. There are a variety I pick from, but they’ll tend to be related to my work, or things around wellbeing and emotional health. I see it as CDP (continuous professional development) time –…
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Continue reading →: It’s a starfish problemImage: https://www.thoughtco.com/facts-about-sea-stars-2291865 Last week I had the opportunity to meet with two colleagues, Jenni and Kate, who also work in the PPI field. They are based at different organisations, but they encounter the same things I do in my work and I admire them both very much for their knowledge…
Hello,
I’m Sharon
I’m on a journey to discover authentic patient and public involvement in research in a range of settings, through conversations, creativity and cake!
This blog is a reflection of my research journey and the things I learn along the way; some of it may be technical, some of it may be reflective, or inviting a conversation. Views are my own and don’t reflect the values of any organisations mentioned.
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Authentic PPIE - the (re)search for authentic engagement 